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Japan Gaucher Research - 002

Japan Gaucher Research - 002 - JGR-002

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-jRCT1090220305
Enrollment
5
Registered
2017-07-28
Start date
2004-11-01
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Gaucher disease

Interventions

Intervention type: Name of intervention: Dose form / Japanese Medical Device Nomenclature: Route of administration / Site of application: Dose per administration: Dosing frequency / Frequency of use:

Sponsors

Kazuya Tsuboi
Lead Sponsor
Hiroshi Yamamoto
Collaborator

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1.Patients with a diagnosis of GD based on histological diagnosis, measurements of enzyme activity, and genetic testing. 2.Patients receiving treatment with imiglucerase 60 U/kg every two weeks or Velaglucerase alfa 60 U/kg every two weeks.

Exclusion criteria

Exclusion criteria: 1.Patients with osteogenic malignancy or bone metastases were excluded.

Design outcomes

Primary

MeasureTime frame
In this study, we evaluate bone lesions in Gaucher disease and the long-term efficacy of Enzyme replacement therapy on bone lesions. This prospective observational study is initiated in November 2004. ERT is performed at Nagoya Central Hospital where this study is conducted. Except for bone tissue immunostaining, all observation-tests for the study including various relevant tests, bone X-ray, bone MRI, BMD (DXA method), and blood tests are conducted in the same hospital, in addition to clinical symptoms.

Countries

Japan

Contacts

Public ContactKazuya Tsuboi

Nagoya Central Hospital

kazuya.tsuboi@jr-central.co.jp+81-52-452-3165

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026