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Real-world study of evinacmab

Real-World Observational Study of Patients Treated with Evinacumabab

Status
Recruiting
Phases
Phase 4
Study type
Observational
Source
JPRN
Registry ID
JPRN-jRCT1041250126
Enrollment
40
Registered
2025-11-11
Start date
2025-11-11
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Homozygous Familial Hypercholesterolemia

Interventions

None listed

Sponsors

Tada Hayato
Lead Sponsor
Tobita Kimimasa
Collaborator

Eligibility

Inclusion criteria

Inclusion criteria: Patients with homozygous familial hypercholesterolemia treated with evinacumab

Exclusion criteria

Exclusion criteria: Patients who did not provide consent to participate in the study, except at institutions that adopted opt-out procedures.

Design outcomes

Primary

MeasureTime frame
To evaluate the incidence and severity of adverse events in patients with homozygous familial hypercholesterolemia (HoFH) receiving intravenous evinacumab (15 mg/kg) every four weeks. Additionally, to assess the efficacy of evinacumab based on changes in LDL cholesterol levels following administration.

Secondary

MeasureTime frame
1. Descriptive evaluation of the clinical status of patients treated with evinacumab, including performed examinations, concomitant medications, combination therapies, comorbidities and medical history, and physical findings. 2. Descriptive evaluation of changes in concomitant medications and combination therapies following administration of evinacumab. 3. Descriptive evaluation of changes in cardiovascular lesions (e.g., carotid intima-media thickness [IMT], cardiovascular imaging findings) after evinacumab administration. 4. Descriptive evaluation of changes in clinical laboratory values following evinacumab administration. 5. Descriptive evaluation of changes in xanthomas after evinacumab administration. 6. Descriptive evaluation of the safety and efficacy of evinacumab based on genotype, age, sex, and treatment background.

Countries

Japan, N A

Contacts

Public ContactHayato Tada

Kanazawa University Graduate School of Medical Sciences

ht240z@sa3.so-net.ne.jp+81-76-265-2000

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026