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Japanese Bleeding Disorders Registry Study

Japanese Bleeding Disorders Registry Study - JBDR Study

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-jRCT1040240120
Enrollment
10000
Registered
2024-11-06
Start date
2025-04-30
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Congenital Hemophilia A/B, von Willebrand's disease, Related Diseases, Hemophilia carrier

Interventions

None listed

Sponsors

MATSUMOTO TAKESHI
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Person corresponding to any of 1), 2), and 3), and 4) of the following items 1) Person with hemorrhagic diathesis due to congenital blood coagulation factor abnormalities 2) von Willebrand disease patient 3) Hemophilia carrier 4) Study subject who has provided consent for participation in the study using the informed consent form by him/herself or his/her legal representative; however, if it is judged that a minor study subject can express his/her intention, the consent to participate in the study should be obtained from the study subject him/herself using an informed assent form.

Exclusion criteria

Exclusion criteria: 1) Person with acquired hemorrhagic diathesis 2) Person with thrombotic diathesis

Design outcomes

Primary

MeasureTime frame
Actual use of each drug in bleeding disorders Information, etc. on patient demographics/treatment status/complications/efficacy/bleeding disorders-related tests Frequency and patient demographics of thromboembolic events and intracranial hemorrhage

Contacts

Public ContactTAKESHI MATSUMOTO

Saitama Medical Center

matsutak@saitama-med.ac.jp+81-49-228-3505

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026