FindTrial
Sign In

A survey of patients and families with gastrointestinal polyposis syndromes from children to adults

A survey of patients and families with gastrointestinal polyposis syndromes from children to adults

Status
Recruiting
Phases
Unknown
Study type
Unknown
Source
JPRN
Registry ID
JPRN-jRCT1031230466
Enrollment
100
Registered
2023-11-21
Start date
2023-11-21
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Peutz-Jeghers syndrome, Juvenile polyposis syndrome, Cowden syndrome, PTEN hamartoma tumor syndrome Peutz-Jeghers syndrome, Juvenile polyposis syndrome, Cowden syndrome, PTEN hamartoma tumor syndrome

Interventions

None listed

Sponsors

Sakamoto Hirotsugu
Lead Sponsor
Kawasaki Yuko
Collaborator

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Patients (including family members) with a diagnosis of Peutz-Jeghers syndrome (PJS), Juvenile Polyposis Syndrome (JPS), or Cowden syndrome/PTEN Hamartoma Tumor Syndrome (PHTS).

Exclusion criteria

Exclusion criteria: Those who have difficulty reading the 2D barcode on their devices or answering the questionnaire and those who are unable to cooperate with the survey.

Design outcomes

Primary

MeasureTime frame
Psychosocial burden of the individual (10 items)—

Secondary

MeasureTime frame
Basic information (10 items), psychosocial burden of family (5 items), information necessary in medical treatment (12 items), items related to quality of life (12 items)—

Contacts

Public ContactHirotsugu Sakamoto

Jichi Medical University Hospital

94036hs@jichi.ac.jp+81-285-58-7348

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026