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Siblings' Perspectives and Involvement in Future Care and Care Planning for Persons with Disabilities: A Scoping Review

Siblings' Perspectives and Involvement in Future Care and Care Planning for Persons with Disabilities: A Scoping Review - Siblings' Perspectives and Involvement in Future Care and Care Planning for Persons with Disabilities: A Scoping Review

Status
Active, not recruiting
Phases
Unknown
Study type
Unknown
Source
JPRN
Registry ID
JPRN-UMIN000060860
Enrollment
Unknown
Registered
2026-03-06
Start date
2025-08-10
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None

Interventions

None listed

Sponsors

Hokkaido University
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Focuses on siblings of children and adults with disabilities,parents and grandparents are excluded. If parents, grandparents, or professionals are included in the sample but results can be distinguished,they may be included. This literature review does not restrict the age of siblings. Regarding the type of disability, both congenital and acquired disabilities are included. Includes both home based and institutional care settings. Articles in Japanese or English. Publication year,2000 or later.

Exclusion criteria

Exclusion criteria: Exclude cases where the person with a disability has a mental illness or learning disability. Cases where the child with a disability is clearly an infant or toddler or otherwise not yet of school age. Academic conference reports,review articles, reviews, book chapters, doctoral dissertations, and other degree theses. Intervention studies. Research on advance care planning,ACP.

Design outcomes

Primary

MeasureTime frame
Siblings' percepcions and involvement regarding future care and care plans for persons with disabilities

Countries

Japan

Contacts

Public ContactAkemi Matsuzawa

Faculty of Health Sciences, Hokkaido University Comprehensive Developmental Nursing

matsuzawa@hs.hokudai.ac.jp0117063378

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026