Neurodevelopmental disorders (including autism spectrum disorder) and Down syndrome with intellectual disability
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Parents/guardians of children with intellectual disability and or developmental disabilities who participate in a surf therapy program (6 weekly sessions) delivered by The SCC Surf Therapy Japan Aged over18 years and able to provide written informed consent Able to complete questionnaires (KIDSCREEN-27 parent-proxy) at pre post intervention and 1 month follow up, and weekly web based ratings after each session (six assessments)
Exclusion criteria
Exclusion criteria: Unable to provide written informed consent (parent guardian) Unable to complete questionnaires (KIDSCREEN27 parent-proxy) and or weekly web-based ratings The child is deemed unable to participate safely in surf therapy due to medical/safety reasons (e.g., contraindications to physical activity or ocean-based activities) Withdrawal of consent discontinuation from the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| ealth-related quality of life (KIDSCREEN27 parent proxy): total raw sum score (27 items; range 27 135) and raw sum scores for five subscales. Time points: pre intervention (Pre), immediately post intervention (Post), and 1 month follow up (1M). | — |
Secondary
| Measure | Time frame |
|---|---|
| Weekly caregiver rated behavioral attitudinal/daily rhythm functioning, assessed after each surf therapy session. For exploratory analyses, change is summarized across Time 1 Time 4 among participants attending over 4 sessions. | — |
Countries
Japan
Contacts
The University of Tokyo Hospital Department of Healthcare Information Management