Skip to content

Exploratory Analysis of Disease and Treatment Burden for Patients with Hypoparathyroidism: A Qualitative Study of Effects on Daily Life

Exploratory Analysis of Disease and Treatment Burden for Patients with Hypoparathyroidism: A Qualitative Study of Effects on Daily Life - Exploratory Analysis of Disease and Treatment Burden for Patients with Hypoparathyroidism: A Qualitative Study of Effects on Daily Life

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-UMIN000060482
Enrollment
10
Registered
2026-04-20
Start date
2026-04-01
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Hypoparathyroidism

Interventions

None listed

Sponsors

Kurume University
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Upon obtaining informed consent: (1) Patients >= 18 years of age (2) patients with a confirmed diagnosis of hypoparathyroidism (3) Previously treated with activated vitamin D (4) Patients with laboratory data for serum calcium, * serum phosphorus, and intact PTH (5) Patients who can voluntarily consent to participate in the study *Basically, an albumin-corrected value will be used, but if not available, a corrected calcium value will be calculated from the serum calcium value using Payne's formula. - Payne's formula: corrected Ca level (mg/dL) = measured Ca level (mg/dL) + (4 -Alb level (g/dL)) At enrollment: (1) Experienced distress due to hypoparathyroidism

Exclusion criteria

Exclusion criteria: Upon obtaining informed consent: (1) Diagnosis of pseudohypoparathyroidism (2) Patients considered by physician to be ineligible

Design outcomes

Primary

MeasureTime frame
- Burden of Disease (Physical, Emotional, and Social Aspects) - Treatment Burden (Traditional Pain Points)

Countries

Japan

Contacts

Public ContactKenji Ashida

Department of Internal Medicine, Kurume University School of Medicine Division of Endocrine and metabolic disease

ashida@med.kurume-u.ac.jp0942-31-7563

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026