Factors Affecting the Quality of Life of Children with Pediatric Epilepsy: Focusing on Caregivers' Parenting Attitudes and Children's Illness Acceptance

Factors Affecting the Quality of Life of Children with Pediatric Epilepsy: Focusing on Caregivers' Parenting Attitudes and Children's Illness Acceptance - Factors Affecting the Quality of Life of Children with Pediatric Epilepsy: Focusing on Caregivers' Parenting Attitudes and Children's Illness Acceptance

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000058941

Enrollment

150

Registered

2025-09-01

Start date

2025-09-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Pediatric epilepsy

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1. A father or mother raising a child with epilepsy who is in grades 1 through 9 2. The child has been diagnosed with childhood epilepsy and is currently receiving outpatient treatment 3. The participant is able to answer questions in Japanese 4. The participant is able to sign a written informed consent form and provide consent to participate in the study

Exclusion criteria

Exclusion criteria: 1.Caregivers of children diagnosed with conditions other than pediatric epilepsy

Design outcomes

Primary

Measure	Time frame
Shortened Version of QOL Questionnaire QOLCE-J in Childhood Epilepsy (QOLCE-Js52) Source: Moriguchi E., Nagai T., Ito M. (2019). Verification of the reliability and validity of the Quality of Life in Childhood Epilepsy Questionnaire QOLCE-Js52. Journal of the Japan Epilepsy Society, 37(2), 606.	—

Secondary

Measure	Time frame
Positive and Negative Parenting Scale (PNPS) Source: PNPS Test Paper "Standard Edition" (Kaneko Shobo Co., Ltd.) Likert Scale for Illness Acceptance in Children with Epilepsy Face Sheet: Caregiver Characteristics (Gender, Age), Child Characteristics (Gender, Age, Age at Onset)	—

Countries

Japan

Contacts

Public ContactRika Ogosi

University of Tsukuba Doctoral & Master's Program in Nursing Science

s2521396@u.tsukuba.ac.jp029-853-3427

Outcome results