A Study on the educational use of a simulation-based card game on pediatric-to-adult healthcare transition for individuals with childhood-onset neurologic conditions: A multi-perspective study involving patients, families, supporters, and healthcare professionals

A Study on the educational use of a simulation-based card game on pediatric-to-adult healthcare transition for individuals with childhood-onset neurologic conditions: A multi-perspective study involving patients, families, supporters, and healthcare professionals - A Study on the educational use of a simulation-based card game on pediatric-to-adult healthcare transition for individuals with childhood-onset neurologic conditions: A multi-perspective study involving patients, families, supporters, and healthcare professionals

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000058540

Enrollment

115

Registered

2025-08-24

Start date

2025-08-24

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Childhood-onset neurologic conditions, Spina bifida

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: I. Children with childhood-onset neurologic conditions, including spina bifida II. Parents and support providers of children with childhood-onset neurologic conditions III. Healthcare professionals

Exclusion criteria

Exclusion criteria: Those who are unable to independently participate in the game and respond to the questionnaire, or who are otherwise judged by the principal investigator to be unsuitable for participation.

Design outcomes

Primary

Measure	Time frame
In children with childhood-onset neurologic conditions, resilience will be evaluated using a child resilience scale after the first game session, after the second session, and six weeks following the second session. For parents and support providers of these children, resilience will be assessed using an adult resilience scale immediately after the game and six weeks later. For healthcare professionals, awareness regarding transitional care will be evaluated after completion of the game.	—

Measure

Time frame

In children with childhood-onset neurologic conditions, resilience will be evaluated using a child resilience scale after the first game session, after the second session, and six weeks following the second session. For parents and support providers of these children, resilience will be assessed using an adult resilience scale immediately after the game and six weeks later. For healthcare professionals, awareness regarding transitional care will be evaluated after completion of the game.

—

Secondary

Measure	Time frame
In children with childhood-onset neurologic conditions, quality of life QOL will be assessed and health-related QOL, after the first game session, after the second session, and six weeks following the second session. For parents and support providers, anxiety levels and awareness of transitional care will be evaluated after the game and again six weeks later.	—

Countries

Japan

Contacts

Public ContactMiho Osako

Institute of Science Tokyo Graduate School of Medical and Dental Sciences, Personalized Genomic Medicine for Health

osako.miho@tmd.ac.jp03-5803-4728

Outcome results