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Qualitative Patient Interview Study in Patients with IgA Nephropathy

Qualitative Patient Interview Study in Patients with IgA Nephropathy - Qualitative Patient Interview Study in Patients with IgA Nephropathy

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-UMIN000058311
Enrollment
22
Registered
2025-06-30
Start date
2025-06-30
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

IgA nephropathy

Interventions

None listed

Sponsors

Viatris Pharmaceuticals Japan G.K.
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Patients who meet the following criteria will be included in the analysis: 1. Patients with a definitive diagnosis of IgA nephropathy by renal biopsy 2. Patients over 18 years of age and residing in Japan from diagnosis to the present 3. Patients who have no problems conducting interviews in Japanese or reading and writing 4. Patients who have received steroids or immunosuppressive agents or have tonsillectomy 5. Patients who have obtained consent by the person voluntarily

Exclusion criteria

Exclusion criteria: Patients who meet the following criteria will be excluded from the analysis: 1. Patients with a diagnosis of mental illness (depression, schizophrenia, etc.)

Design outcomes

Primary

MeasureTime frame
Study items based on interviews consultation - definitive diagnosis Symptoms (presence or absence of fatigue, edema, or frequent urination and the occasion for medical examination, Ease of consultation with the attending physician) Treatment (Impact on Daily Life, Adjustment of the need and timing of hospitalization, Desired treatment options, Burden of medical expenses and public support, Treatment of other diseases and collaboration between departments, Hopes and goals for the future) obtaining information, communicating with related parties (Relationships with people around you (family, friends, work) and medical professionals, Features of < websites and materials)

Countries

Japan

Contacts

Public ContactAnri Watanabe

3H Medi Solution Inc. The rare intractable disease information site "RareS." Inquiry Desk

research_info_or2@3h-ms.co.jp03-5985-0053

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026