IgA nephropathy
Conditions
Interventions
None listed
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Patients who meet the following criteria will be included in the analysis: 1. Patients with a definitive diagnosis of IgA nephropathy by renal biopsy 2. Patients over 18 years of age and residing in Japan from diagnosis to the present 3. Patients who have no problems conducting interviews in Japanese or reading and writing 4. Patients who have received steroids or immunosuppressive agents or have tonsillectomy 5. Patients who have obtained consent by the person voluntarily
Exclusion criteria
Exclusion criteria: Patients who meet the following criteria will be excluded from the analysis: 1. Patients with a diagnosis of mental illness (depression, schizophrenia, etc.)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Study items based on interviews consultation - definitive diagnosis Symptoms (presence or absence of fatigue, edema, or frequent urination and the occasion for medical examination, Ease of consultation with the attending physician) Treatment (Impact on Daily Life, Adjustment of the need and timing of hospitalization, Desired treatment options, Burden of medical expenses and public support, Treatment of other diseases and collaboration between departments, Hopes and goals for the future) obtaining information, communicating with related parties (Relationships with people around you (family, friends, work) and medical professionals, Features of < websites and materials) | — |
Countries
Japan
Contacts
3H Medi Solution Inc. The rare intractable disease information site "RareS." Inquiry Desk