Advance Care Planning (ACP) from the Perspective of Patients with Amyotrophic Lateral Sclerosis: A Qualitative Analysis Using the Grounded Theory Approach

Advance Care Planning (ACP) from the Perspective of Patients with Amyotrophic Lateral Sclerosis: A Qualitative Analysis Using the Grounded Theory Approach - Advance Care Planning (ACP) from the Perspective of Patients with Amyotrophic Lateral Sclerosis: A Qualitative Analysis Using the Grounded Theory Approach

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000058085

Enrollment

Registered

2025-06-05

Start date

2024-11-28

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

amyotrophic lateral sclerosis

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients diagnosed with ALS by an IC, those who the referrer determines can be interviewed through conversation or other means of communication, and those classified as severity levels 2 to 4 in the severity classification.

Exclusion criteria

Exclusion criteria: Those whom the referrer judges to be mentally or psychologically difficult to interview for about one hour, or those who have difficulty in communicating in Japanese.

Design outcomes

Primary

Measure	Time frame
Discussions for when you are no longer able to express one's wishes	—

Countries

Japan

Contacts

Public ContactAtsuko Furuta

University of Tsukuba Graduate School of Comprehensive Human Science Doctoral & Master' s Program in Nursing Science

s2330463@u.tsukuba.ac.jp09086818630

Outcome results