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Questionnaire Survey for Japanese IgA nephropathy patients

Questionnaire Survey for Japanese IgA nephropathy patients - Questionnaire Survey for Japanese IgA nephropathy patients

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-UMIN000055933
Enrollment
100
Registered
2024-10-25
Start date
2024-10-25
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

IgA nephropathy

Interventions

None listed

Sponsors

Viatris Pharmaceuticals Japan G.K.
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. Patients with a confirmed diagnosis of IgA nephropathy by renal biopsy. 2. Japanese patients (regardless of gender) aged 18 years or older at the time of consent

Exclusion criteria

Exclusion criteria: 1. Patients currently receiving dialysis treatment. 2. Patients who have undergone renal transplantation

Design outcomes

Primary

MeasureTime frame
1. Presence of (current) IgA nephropathy symptoms 2. Frequency of (current) IgA nephropathy symptoms 3. The impact of each symptom of IgA nephropathy on daily life (for each symptom) 4. The symptoms of IgA nephropathy that particularly affect daily life (rank the symptoms accordingly) 5. No longer able to do daily activities due to IgA nephropathy symptoms. 6. Symptoms of IgA nephropathy that would like to improve (rank the relevant symptoms)

Secondary

MeasureTime frame
1. Communication with doctors 2. Actual condition and intention of SDM 3. Satisfaction with treatment 4. Reasons for satisfaction with treatment 5. Sources of information on treatment 6. Information needed or lacking in treatment options 7. Ease of telling others about IgA nephropathy 8. Reasons for reluctance to tell others about IgA nephropathy

Countries

Japan

Contacts

Public ContactTatsuya Ishikawa

3H Medi Solution Inc. Insight Solution Promotion Office

ishikawa-tatsuya@3h-ms.co.jp03-5985-0053

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026