Interstitial lung diseases
Conditions
Interventions
None listed
Sponsors
Hamamatsu university school of medicine
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Patients who meet all of the following criteria are eligible (1) Patients who meet the diagnosis of idiopathic pulmonary fibrosis or progressive fibrosing interstitial lung diseases (PF-ILD) by the respiratory medicine department at the facility. (2) Patients who have been informed of the difficulty of cure and acute exacerbation of interstitial lung disease. (3) Patients must be at least 20 years of age. (4) Patients whose consent to participate in this study has been obtained by signing a consent form in person.
Exclusion criteria
Exclusion criteria: Patients who meet any of the following criteria will not be included in this study. (1) Patients with complications of active malignancy requiring chemotherapy. (2) Patients who are unable to complete the self-administered questionnaire due to dementia, mental retardation, or visual impairment. (3) Patients who have had an acute exacerbation of interstitial lung disease within 3 months of onset. (4) Patients who need acute treatment for pneumonia or other diseases. (5) Implementation of the research is undesirable as a comprehensive judgment by doctors, nurses, and other multidisciplinary professionals due to strong distrust or misunderstanding of the medical care received or extremely poor relationships with medical personnel.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Percentage of the overall population with or without prognostic awareness | — |
Secondary
| Measure | Time frame |
|---|---|
| Different prognostic perceptions when grouped by disease progression (GAP stage) Association of prognostic awareness with quality of life (total CAT score, EQ5D5L) and degree of dyspnea (mMRS, NRS) Association between prognosis awareness and PHQ9 scores Association between prognostic awareness and the status of conversations with the patient's doctor Understanding Patient Needs | — |
Countries
Japan
Contacts
Public ContactShusuke Yazawa
Hamamatsu university school of medicine Respiratory Medicine
Outcome results
None listed