Integrated Clinical and Omics information Registry in Pulmonary Hypertension

RAre Disease DAta Registry of Japan[78] - RADDAR-J [78]

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000052692

Enrollment

1000

Registered

2023-11-03

Start date

2023-06-27

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Pulmonary arterial hypertension

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1)Patients diagnosed as pulmonary hypertension according to pulmonary hypertension treatment guidelines in one of the following groups: group 1 (pulmonary arterial hypertension), group 1.5 (pulmonary veno-occlusive disease/pulmonary capillary hemangiomatosis), group 4 (chronic thromboembolic pulmonary hypertension) or group 5 (pulmonary hypertension associated with a multifactorial mechanism of unknown detail) 2)Patients who consented to participate in the study in writing.

Exclusion criteria

Exclusion criteria: Patients judged to be inappropriate as a candidate by the investigators.

Design outcomes

Primary

Measure	Time frame
1) Deaths (all cause or disease related)) 2) EQ-5D-5L Survey 3) Treatment details 4) Clinical severity including hemodynamics	—

Countries

Japan

Contacts

Public ContactMiki Yanagihara

National Hospital Organization Okayama Medical Center Clinical Research Department

ph.registry.raddar.j78@gmail.com086-294-9911

Outcome results