A Web-based Survey to Assess Disease Burden among Self-diagnosed Patients with Hidradenitis Suppurativa in Japan

A Web-based Survey to Assess Disease Burden among Self-diagnosed Patients with Hidradenitis Suppurativa in Japan - A Web-based Survey to Assess Disease Burden among Self-diagnosed Patients with Hidradenitis Suppurativa in Japan

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000049713

Enrollment

400

Registered

2022-12-07

Start date

2022-12-07

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Hidradenitis Suppurativa

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: -Meet all 3 self-diagnosed criteria based on the JDA guideline *Presence of nodules (inflamed or noninflamed), sinus tracts (inflamed or noninflamed), follicular papule/pustule (folliiculitis), abscesses, scarring (atrophic, mesh-like, red, hypertrophic, linear, or bridged) *More than 2 clinical signs at different areas, including axilla, genitofemoral area, perineum, gluteal area, and infra-mammary area of women (under or between breasts) *Recurrent painful or suppurating lesions more than 2x/6 months -Aged 16+ years at screening -Have willingness and ability to provide informed consent

Exclusion criteria

Exclusion criteria: -Have been diagnosed with HS by physician -Did not answer all questionnaire

Design outcomes

Primary

Measure	Time frame
DLQI total scores DLQI domain scores Sociodemographic characteristics Health-related information HSSA scores WPAI: HS scores HiSQOL scores SF-36 scores	—

Countries

Japan

Contacts

Public ContactTakeshi Akiyama

IQVIA Solutions Japan K.K. Real World Evidence Solutions & HEOR

takeshi.akiyama@iqvia.com070-1640-7263

Outcome results