Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma from the Perspectives of Patients and Their Care Partners in Japan

Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma from the Perspectives of Patients and Their Care Partners in Japan - Patient Pathway, Burden and Priority in Life with Dedifferentiated Liposarcoma in Japan

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000048067

Enrollment

Registered

2022-07-01

Start date

2023-02-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Dedifferentiated liposarcoma

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patient Inclusion Criteria: 1) A patient with diagnosis of dedifferentiated liposarcoma 2) 18 years of age or older Exclusion Criteria: 1) A patient judged as difficult to participate (be interviewed)in this study per treating physician (specialist) Care partner Inclusion criteria: 1) A family member, a relative or a partner who lives together or regularly and constantly communicate with the patient who is eligible for this study and appointed by the patient 2) 18 years of age or older

Exclusion criteria

Exclusion criteria: None

Design outcomes

Primary

Measure	Time frame
Demographics, symptoms and conditions, diagnosis and treatment history, burden of disease and treatment, burden of patient care support from others, access to information, liposarcoma disease awareness, future treatment, expectations of changes in life and social environment	—

Countries

Japan

Contacts

Public ContactNobutaka Yagi

Nippon Boehringer Ingelheim Co., Ltd. Patient Engagement

nobutaka.yagi@boehringer-ingelheim.com0364172043

Outcome results