The Burden of Illness of Rare Epilepsies (Dravet syndrome, Lennox-Gastaut and Tuberous Sclerosis Complex) in Caregivers in Japan: A Caregiver Burden Study

The Burden of Illness of Rare Epilepsies (Dravet syndrome, Lennox-Gastaut and Tuberous Sclerosis Complex) in Caregivers in Japan: A Caregiver Burden Study - The Burden of Illness of Rare Epilepsy in Caregivers

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000047791

Enrollment

Registered

2022-05-18

Start date

2022-09-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Dravet syndrome, Lennox-Gastaut syndrome, tuberous sclerosis complex

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Participants must meet ALL of the following criteria to be considered for enrollment: .Aged 18 or older .Born in and currently reside in Japan .Caregivers of patients with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS) or tuberous sclerosis syndrome (TSC) .Caregivers of patients who have had a diagnosis of the disease for at least 12 months. .Caregivers of patients currently receiving treatment for epilepsy symptoms Supplemental:Includes patients who are not currently experiencing epilepsy symptoms due to epilepsy treatment.

Exclusion criteria

Exclusion criteria: Those who do not meet the inclusion criteria

Design outcomes

Primary

Measure	Time frame
Burden of Caregivers of Three Rare Epilepsy Diseases Based on a Quantitative Questionnaire Survey of Caregivers	—

Countries

Japan

Contacts

Public ContactMichael LOPRESTI

INTAGE Healthcare Inc. Data Science Division

m.lopresti@intage.com050-3640-1444

Outcome results