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Prospective study of patient / patient's caregiver and physician preferences for treatment of hemophilia

Prospective study of patient / patient's caregiver and physician preferences for treatment of hemophilia - Prospective Study of Preferences for Treatment of Hemophilia

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-UMIN000047727
Enrollment
150
Registered
2022-05-13
Start date
2022-05-20
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Hemophilia

Interventions

None listed

Sponsors

INTAGE Healthcare, Inc.
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Patients 1) Age 18 years or older 2) Current without inhibitor 3) Has 6 months or more experience with self-injection of prophylactic treatment with a coagulation factor preparation 4) Willing and able to provide consent, indicating that they understand the purpose and procedures required for the study and are willing to participate in the study Patient caregivers 1) Caregiver of hemophilia under 18 years 2) Caregiver of patient currently without inhibitor 3) Has 6 months or more experience with injection of prophylactic treatment with a coagulation factor preparation 4) Willing and able to provide consent, indicating that they understand the purpose and procedures required for the study and are willing to participate in the study Physicians 1) Targeted specialists (general internists medicine, hematologists, pediatrics) 2) Have treated at least one patient with hemophilia with drugs within the past year 3) Willing and able to provide consent, indicating that they understand the purpose and procedures required for the study and are willing to participate in the study

Exclusion criteria

Exclusion criteria: Those that do not meet the inclusion criteria

Design outcomes

Primary

MeasureTime frame
Examine the similarities and differences in perceptions of treatment between patient/patient's caregiver and physician (DCE)

Secondary

MeasureTime frame
Examine the similarities and differences in perceptions of treatment between patient/patient's caregiver and physician.

Countries

Japan

Contacts

Public ContactMichael LoPresti

INTAGE Healthcare Inc. Health Economics & Outcomes Research Division

m.lopresti@intage.com+815036401444

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026