Locked-in syndrome caused by neurological disease, such as ALS
Conditions
Interventions
None listed
Sponsors
St Luke's International University
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: We will search the following database, MEDLINE, PubMed, Cochrane and Embase related to the psychological well-being of Locked-in syndrome published within the last 30 years. Search terms will include ("Locked-in syndrome" OR "Locked-in state") AND ("Quality of life" OR "well-being" OR "psychological"). The search includes any kind of articles with human subjects, and written in the English languages. Consequently, we will include articles with the following characteristics. 1) Population: patients with Locked-in syndrome; 2) Concept: evaluation of psychological well-being for patients with Locked-in syndrome and explore the elements influencing it, such as country of origin; 3) Context: psychological well-being, such as mental wellness, anxiety, depression, autonomy, isolation or suicidal ideation must be included in the outcome of articles
Exclusion criteria
Exclusion criteria: experimental intervention studies, such as brain-computer interface are excluded because it might make it difficult to interpret the QoL in general LIS patients.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| the actual psychological well-being of LIS patients | — |
Countries
Japan
Contacts
Public ContactHiroshi Yoshiki
St Luke's International University Graduate school of public health
Outcome results
None listed