Building a platform for surveying and sharing information on patients with inflammatory bowel disease using social network services.

Building a platform for surveying and sharing information on patients with inflammatory bowel disease using social network services. - IBD-LINQ

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000047474

Enrollment

500

Registered

2022-05-01

Start date

2022-06-27

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Inflammatory bowel disease, Crohn&#39

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Diagnosis of inflammatory bowel disease (Crohn's disease, ulcerative colitis, intestinal Behcet's disease, etc.) The individual is using the LINE service operated by LINE Corporation on his/her mobile device.

Exclusion criteria

Exclusion criteria: (1) Those who have difficulty using the LINE service (2) Others whom the attending physician deems inappropriate

Design outcomes

Primary

Measure	Time frame
Annual change in response rate for regular survey questionnaires Response rates and trends for irregular surveys	—

Secondary

Measure	Time frame
Enrollment rate in the system among patients attending an outpatient clinic for the disease in question Differences in response rates between anonymized and linkable anonymized questionnaires Differences in response rates between surveys that generate rewards and those that do not Comparison of all of the above by disease, gender, and age group	—

Countries

Japan

Contacts

Public ContactYoichi Kakuta

Tohoku University Hospital Division of Gastroenterology

ykakuta@med.tohoku.ac.jp0227177171

Outcome results