A registry study on primary/idiopathic triglyceride deposit cardiomyovasculopathy

A registry study on primary/idiopathic triglyceride deposit cardiomyovasculopathy - A registry study on primary/idiopathic triglyceride deposit cardiomyovasculopathy

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000047309

Enrollment

350

Registered

2022-03-30

Start date

2022-03-30

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

primary/idiopathic triglyceride deposit cardiomyovasculopathy

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Adult patients (excluding under 20 years old) who have been confirmed as TGCV based on the diagnostic criteria for TGCV by a cardiologist.

Exclusion criteria

Exclusion criteria: The patients who refused to participate in the study by opt-out

Design outcomes

Primary

Measure	Time frame
The period between the date of TGCV diagnosis and the date of death due to any cause	—

Secondary

Measure	Time frame
-Clinical and laboratory profile of patients with idiopathic TGCV -Changes in each laboratory findings -Presence (date of occurrence or treatment) or absence of various events -Exploration for prognostic factors -Changes in laboratory findings and frequency of events before and after nutritional therapy using tricaprin-containig foods, etc.	—

Countries

Japan

Contacts

Public ContactKen-ichi Hirano

Osaka University, Graduate School of Medicine Department of Triglyceride Science

registry@cnt-osaka.com06-6872-8215

Outcome results