Survey on the natural history of idiopathic cerebellar ataxia

Survey on the natural history of idiopathic cerebellar ataxia - Survey on the natural history of idiopathic cerebellar ataxia

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000047133

Enrollment

100

Registered

2022-03-31

Start date

2022-04-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

idiopathic cerebellar ataxia (IDCA)

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: (1) patients diagnosed as one of the diseases shown below. probable or possible IDCA probable or possible MSA-C SCA6 or SCA31 confirmed by genetic testing (2) age over 20 years

Exclusion criteria

Exclusion criteria: (1) patients who cannot visit a hospital or clinic regularly (except those who are hospitalized) (2) patients who cannot communicate with the physician (3) patients who have cerebrovascular diseases or orthopedic diseases which disturb their ability of daily life considerably (4) patients who have severe chronic heart failure, liver failure, or renal failure (5) patients who are judged as inapplicable for the study by the physician

Design outcomes

Primary

Measure	Time frame
the estimated annual change of the total score of the questionnaire which has been newly developed for this study	—

Secondary

Measure	Time frame
the estimated annual change of the each score of the questionnaire which has been newly developed for this study	—

Countries

Japan

Contacts

Public ContactAkira Matsushima

Shinshu University School of Medicine Neurology and Rheumatology

matsuaki82@gmail.com0263372673

Outcome results