Symptom Relief and Quality of Dying and Death (QODD) in Patients with Interstitial Lung Disease and Lung Cancer: A Multicenter Cross-sectional Study

Symptom Relief and Quality of Dying and Death (QODD) in Patients with Interstitial Lung Disease and Lung Cancer: A Multicenter Cross-sectional Study - Symptom Relief and Quality of Dying and Death (QODD) in Patients with Interstitial Lung Disease and Lung Cancer: A Multicenter Cross-sectional Study

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000045526

Enrollment

1200

Registered

2021-09-22

Start date

2021-09-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Interstitial lung disease and lung cancer

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients who meet all of the following criteria are eligible 1. Patients who died of interstitial lung disease or lung cancer in the respiratory medicine department of the participating institutions. Drug-induced lung injury and radiation pneumonitis are not included in interstitial lung disease in this study. 2. The age of the patient at the time of death is 20 years or older. 3. The age of the bereaved family is 20 years or older.

Exclusion criteria

Exclusion criteria: Patients who meet any of the following criteria will not be included in this study 1. Death due to adverse events or judged as treatment-related death. 2. The bereaved family (key person, underwriter) cannot be identified. 3. It is considered difficult for the bereaved family to answer questions about the care they received at the end of life due to restricted visitation. 4. The bereaved family is unable to fill out the survey form due to dementia, mental disability, or visual impairment at the time of discharge. 5. Based on the circumstances at the time of discharge and at present, the bereaved family member is mentally unstable, making it undesirable to conduct the study. 6. Implementation of the research is undesirable as a comprehensive judgment by doctors, nurses, and other multidisciplinary professionals due to strong distrust or misunderstanding of the medical care received or extremely poor relationships with medical personnel.

Design outcomes

Primary

Measure	Time frame
Good death inventory (GDI) scores for the "Physical and mental pain relief" domain.	—

Secondary

Measure	Time frame
The average 10-item score of the Good death inventory (GDI) Prevalence of each physical and psychiatric symptom using MSAS scale assessment Improvement rate of dyspnea symptoms	—

Countries

Japan

Contacts

Public ContactTakafumi Koyauchi

Hamamatsu university school of medicine Respiratory Medicine

t.koya@hama-med.ac.jp053-435-2263

Outcome results