Research on the integration and promotion of utilization of extensive information covering a wide variety of rare diseases through the development of comprehensive information infrastructure

Research on the integration and promotion of utilization of extensive information covering a wide variety of rare diseases through the development of comprehensive information infrastructure - RADDAR-J(National platform for Rare Diseases Data Registry of Japan)

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000041161

Enrollment

1000000

Registered

2020-07-20

Start date

2018-04-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Rare Diseases

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Criteria depends on that defined by each research group collaborated with this research

Exclusion criteria

Exclusion criteria: Criteria depends on that defined by each research group collaborated with this research

Design outcomes

Primary

Measure	Time frame
It depends on the research content of the research group which uses this platform.	—

Countries

Japan

Contacts

Public ContactIzumi Yamaguchi

Kyoto University Graduate school of Medicine Center for Genomic Medicine

yamaguchi@genome.med.kyoto-u.ac.jp075-751-4157

Outcome results