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A national survey of ADPKD patients in CKD stage G5

A national survey of ADPKD patients in CKD stage G5 - ADPKD G5 Registry

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-UMIN000039725
Enrollment
250
Registered
2020-05-01
Start date
2019-12-27
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

autosomal dominant polycystic kidney disease(ADPKD)

Interventions

None listed

Sponsors

a Grant-in-Aid for Intractable Renal Diseases Research, Research on rare and intractable diseases, Health and Labour Sciences Research Grants from the Ministry of Health, Labour and Welfare of Japan
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. age over 20 at May 2014 2. ADPKD patients in CKD stage G5 refferred to the institution which participates in this study, from May 2014 to September 2019 3. The patients who were obtained of the agreement

Exclusion criteria

Exclusion criteria: The patients who are not willing to enroll the study and who are judged inappropriate the study by responsibility doctors.

Design outcomes

Primary

MeasureTime frame
the actual situation of ADPKD patients in CKD stage 5 the decline of renal dysfunction in CKD stage G5—

Secondary

MeasureTime frame
the rate of increase in the TKV—

Countries

Japan

Contacts

Public ContactAkinari Sekine

Toranomon Hospital Nephrology Center

akinari-s@toranomon.gr.jp03-3588-1111

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026