Japanese registry for lymphangioleiomyomatosis and alpha1-antitrypsin deficiency

Japanese registry for lymphangioleiomyomatosis and alpha1-antitrypsin deficiency - J-LAM/AATD

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000038966

Enrollment

1000

Registered

2020-04-01

Start date

2020-01-28

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

lymphangioleiomyomatosis and alpha1-antitrypsin deficiency

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1) Patients diagnosed with LAM or AATD 2) Patients obtained informed consent

Exclusion criteria

Exclusion criteria: 1) Patients who are not able to make a decision about entry to this research 2) Patients who are not eligible for entry to this research

Design outcomes

Primary

Measure	Time frame
Assessment of the clinical information from the patients with lymphangioleiomyomatosis and alpha1-antitrypsin deficiency every 5 years.	—

Secondary

Measure	Time frame
Alive or not. Health Questionnaire (EQ-5D-5L) The progressive rate of pulmonry function for the patients with lymphangioleiomyomatosis and alpha1-antitrypsin deficiency	—

Countries

Japan

Contacts

Public ContactKuniaki Seyama

Juntendo University Faculty of Medicine & Graduate School of Medicine Division of Respiratory Medicine

kseyama@juntendo.ac.jp0358021063

Outcome results