Disease registry for rare intractable vassular anomalies, vassular tumors and vascular malformations, RADDAR-J [1]

Disease registry for rare intractable vassular anomalies, vassular tumors and vascular malformations, RADDAR-J [1] - Disease registry, RADDAR-J [1]

Status

Recruiting

Phases

Unknown

Study type

Interventional

Source

JPRN

Registry ID

JPRN-UMIN000038417

Enrollment

2147483647

Registered

2019-10-29

Start date

2019-10-02

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

rare intractable vascular anomalies, vascular tumors, vascular malformtions

Interventions

registry of clinical, biomarker and genomic data

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: informed consent, appicable cases

Exclusion criteria

Exclusion criteria: 1) impossible to rule out the rate and intractable vascular anomalies, vascular tumors and vascular malformations 2) miscellaneous inappropriate for th objects

Design outcomes

Primary

Measure	Time frame
1) patient registration principal investigator's office register the patients willing to parrticipate for the registry. Such patinets registry contiine perpetually. 2) obtaining clinical data, specimens and samples clinical data are collected to the principal investigator's office and modify and revise by the principal investigator's office. In case of collecting specimens and samples, the principal investigeto's office collect clincal data then.	—

Measure

Time frame

1) patient registration principal investigator's office register the patients willing to parrticipate for the registry. Such patinets registry contiine perpetually. 2) obtaining clinical data, specimens and samples clinical data are collected to the principal investigator's office and modify and revise by the principal investigator's office. In case of collecting specimens and samples, the principal investigeto's office collect clincal data then.

—

Secondary

Measure	Time frame
3) genomic analysis genomic specimens and samples sent by physicina in chargewill be analysed in an researc institute.	—

Countries

Japan

Contacts

Public Contactnobuko nakashima

Fukuoka University department of plastic surgery, woind repair and regeneration, school of medicine

n.nakashima@fukuoka-u.ac.jp0928011011

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026