The studies for building up of database of natural history of spinocerebellar ataxia type 1

The studies for building up of database of natural history of spinocerebellar ataxia type 1 - Natural history of SCA1

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000037846

Enrollment

Registered

2019-08-29

Start date

2017-08-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Spinocerebellar ataxia type 1

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: The patients who are definite diagnosed as SCA1 and who can walk for 6 minutes independently.

Exclusion criteria

Exclusion criteria: The patients who are younger than 20 years old or lacking a capacity for judgement because of cognitive impairment.

Design outcomes

Primary

Measure	Time frame
SARA, quantitative analysis of gait ataxia, and 9-hole peg test every 24 weeks. Blood flow of cerebellum and brain MRI findings every 48 weeks.	—

Countries

Japan

Contacts

Public ContactShinichi Shirai

Hokkaido University Hospital The department of Neurology

shirai@med.hokudai.ac.jp011-706-6028

Outcome results