Advancing Care of Adrenal diseases and Adrenal Registry in ASIA

Advancing Care of Adrenal diseases and Adrenal Registry in ASIA - Advancing Care of Adrenal diseases and Adrenal Registry in ASIA

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000037396

Enrollment

2400

Registered

2019-07-17

Start date

2017-10-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Pheochromocytoma, Cushing syndrome, subclinical Cushing syndrome, ACTH Independent Macronodular Adrenal Hyperplasia (AIMAH), Adrenocortical cancer, nonfunctioning adrenal tumor

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients presenting to Kyoto Medical Center and other major medical centers across Japan and Asia who have been diagnosed with PA, PHEO, CS/SCS, AIMAH, ACC, or NFA between January 2006 and December 2018.

Exclusion criteria

Exclusion criteria: Not applicable

Design outcomes

Primary

Measure	Time frame
a. Basic patient information (age, height and weight at initial presentation, sex, past medical history, family history, what led to discovery, outcome, complications, symptoms etc.) b. General laboratory test findings (blood counts, biochemistry, urinalyses etc.) 1 c. Endocrine test results (blood, urine) 2 d. Imaging findings (CT, MRI, FDG-PET, scintigraphy, etc.) e. Treatment (surgery [Y/N, date], Medication [Y/N, drug, dose, method of administration, duration of treatment], radiation [Y/N, date]	—

Measure

Time frame

a. Basic patient information (age, height and weight at initial presentation, sex, past medical history, family history, what led to discovery, outcome, complications, symptoms etc.) b. General laboratory test findings (blood counts, biochemistry, urinalyses etc.) *1 c. Endocrine test results (blood, urine) *2 d. Imaging findings (CT, MRI, FDG-PET, scintigraphy, etc.) e. Treatment (surgery [Y/N, date], Medication [Y/N, drug, dose, method of administration, duration of treatment], radiation [Y/N, date]

—

Countries

Japan,Asia(except Japan)

Contacts

Public ContactNaruse Mitsuhide

National Hospital Organization, Kyoto Medical Center Clinical Research Institute for Endocrine and Metabolic Diseases

asiaoceania.panet@gmail.com075-641-9161

Outcome results