Japan Agency for Medical Research and Development, AMED.Practical Research Project for Rare/Intractable Diseases,Japan Rare/Intractable Adrenal Diseases Study

Japan Agency for Medical Research and Development, AMED.Practical Research Project for Rare/Intractable Diseases,Japan Rare/Intractable Adrenal Diseases Study - JRAS

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000032525

Enrollment

8000

Registered

2018-05-15

Start date

2018-04-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Primary Aldosteronsim, Pheochromocytoma/Paraganglioma, Cushing syndrome, subclinical Cushing syndrome, ACTH-Independent Macronodular Adrenal Hyperplasia (AIMAH), nonfunctioning adrenal tumor

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients who were diagnosed as PA, pheochromocytoma/paraganglioma, Cushing syndrome, subclinical Cushing syndrome, ACTH-independent macronodular adrenal hyperplasia (AIMAH), and nonfunctioning adrenal tumor in Kyoto Medical Center and collaborated centers from Jan, 2006.

Exclusion criteria

Exclusion criteria: Patients who were judged not eligible for the study by respective attending physician

Design outcomes

Primary

Measure	Time frame
1) baseline informations(age, sex, duration of hypertension, family history, past history, comorbidity, medications, symptoms, height, weight, blood pressure, pulse rate), biochemical data, endocrine tests, Imaging 2) protocol and decision criteria of AVS 3) surgical and medical treatment 4) clinical outcomes	—

Secondary

Measure	Time frame
1)Pathological findings 2)Markers of target organ damage:Kidney(eGFR,BUN,Cr),Heart(ECG,CTR) 3)Clinical course(6M,1Y,3Y,5Y):base line information, Laboratory data 4)Imaging	—

Countries

Japan,Asia(except Japan)

Contacts

Public ContactMitsuhide Naruse

National Hospital Organization, Kyoto Medical Center Adrenal Project, Clinical Research Institute for Endocrine and Metabolic Diseases

japan.pa.registry@gmail.com075-641-9161

Outcome results