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Evidence creation through nationwide surveillance of the progeria syndrome Werner syndrome and establishment of a case registration system

Evidence creation through nationwide surveillance of the progeria syndrome Werner syndrome and establishment of a case registration system - Werner syndrome registry

Status
Active, not recruiting
Phases
Unknown
Study type
Unknown
Source
JPRN
Registry ID
JPRN-UMIN000029812
Enrollment
200
Registered
2017-11-03
Start date
2016-04-01
Completion date
Unknown
Last updated
2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Werner Syndrome

Interventions

None listed

Sponsors

Ministry of Health, Labour and Welfare
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. Patients whom diagnosed as Werner Syndrome or related diseases. 2. Patients who wrote informed consent.

Exclusion criteria

Exclusion criteria: N/A

Design outcomes

Primary

MeasureTime frame
(This is a patient registry.) We will clarify current disease profile, natural history and prognosis of WS in Japan through the results of this research and improve patient data accuracy and use effectively, and improve medical system for WS. We will be able to rescue patients who do not have appropriate medical treatment and support patient's prognosis improvement and reintegration by improving the quality of medical treatment.—

Countries

Japan

Contacts

Public ContactMasaya Koshizaka

Chiba University Graduate school of medicine

overslope@chiba-u.jp0432262092

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Jul 3, 2026