Analysis of nationwide survey data of pediatric rheumatic diseases in childhood and adult transition and homogeneity of standard treatment by construction of a nationwide "seamless" medical care network based on the dissimilarity of both

Analysis of nationwide survey data of pediatric rheumatic diseases in childhood and adult transition and homogeneity of standard treatment by construction of a nationwide "seamless" medical care network based on the dissimilarity of both - Analysis of nationwide survey data of pediatric rheumatic diseases and nationwide "seamless" medical care network construction

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000029034

Enrollment

1100

Registered

2017-10-01

Start date

2017-10-01

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Juvenile idiopathic arthritis (JIA), systemic lupus erythematosus (SLE), juvenile dermatomyositis (JDM), Sjogren&#39

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients of all ages from children to adults who are diagnosed and treated at JIC, SLE, JDM, SS based on the diagnostic criteria of the Ministry of Health, Labor and Welfare, at the facility where research director, cooperative researcher, research assistant belongs

Exclusion criteria

Exclusion criteria: Cases in which it is difficult to definitely diagnose the rheumatic disease from clinical course and treatment contents from the medical record

Design outcomes

Primary

Measure	Time frame
Five examinations of the following subjects; 1)actual condition of clinical practice in childhood and adult transition, 2)verification of the validity of conventional classification standards, 3) long-term observation from childhood to adult transition, verification of prognostic factors leading to remission or dysfunction, 4)collecting basic data for database supplementation based on the process to diagnosis, treatment and medication contents, 5)examination of problems related to pregnancy	—

Measure

Time frame

Five examinations of the following subjects; 1)actual condition of clinical practice in childhood and adult transition, 2)verification of the validity of conventional classification standards, 3) long-term observation from childhood to adult transition, verification of prognostic factors leading to remission or dysfunction, 4)collecting basic data for database supplementation based on the process to diagnosis, treatment and medication contents, 5)examination of problems related to pregnancy

—

Countries

Japan

Contacts

Public ContactMasaaki Mori

Tokyo Medical and Dental University Department of Lifetime Clinical Immunology, Graduate School of Medical and Dental Sciences

mori.phv@tmd.ac.jp+81-3-5803-4876

Outcome results