Nation-wide epidemiological study of patients with HTLV-1-associated myelopathy (HAM/TSP)

Nation-wide epidemiological study of patients with HTLV-1-associated myelopathy (HAM/TSP) - HAM-net

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000028400

Enrollment

1000

Registered

2017-08-01

Start date

2012-01-25

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

HTLV-1-Associated-Myelopathy Tropical Spastic Paraparesis (HAM/TSP)

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: (1) HAM/TSP diagnosed (2) Patients with signed informed consent document

Exclusion criteria

Exclusion criteria: None

Design outcomes

Primary

Measure	Time frame
Osame's Motor Disability Score	—

Secondary

Measure	Time frame
Overactive Bladder Symptom Score (OABSS) International Consultation on Incontinence Questionnaire-Short Form (ICIQ-SF) Nocturia Quality of Life (N-QOL) International Prostate Symptom Score (I-PSS) Health Assessment Questionnaire-Disability Index (HAQ-DI) MOS 36-Item Short-Form Health Survey (SF-36)	—

Countries

Japan

Contacts

Public ContactNaoko Yagishita

Secretariat of HAM-net None

ham@htlv1.jp0120-868619

Outcome results