Construction of the medical information system which aims education and total life care for patients with congenital heart diseases.

Construction of the medical information system which aims education and total life care for patients with congenital heart diseases. - A study on the physical, psychological and social problems in adolescence with congenital heart diseases.

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000020745

Enrollment

1000

Registered

2016-01-27

Start date

2016-01-27

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Adolescence with congenital heart diseases and their family

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients 1) Patients diagnosed congenital heart diseases with /without treatments. 2) 16 years old or over 3) Patients who can proceed informed consent (If the patients was under 18 years old, we will obtain informed consent from their family) Family 1) The family who is supporting the patient. 2) Family who can proceed informed consent

Exclusion criteria

Exclusion criteria: Patient 1) Patient with severe diseases except for congenital heart diseases Family 1) Family who is supporting patient with severe diseases except for congenital heart diseases

Design outcomes

Primary

Measure	Time frame
The physical, psychological and social problems in patients with congenital heart diseases, and the psychological and social problems in their family	—

Secondary

Measure	Time frame
The relationships among physical, psychological, and social problems in adolescence with congenital heart diseases	—

Countries

Japan

Contacts

Public ContactAkiko Chishaki

Kyushu University Graduate School of Medical Sciences Department of Health Sciences

chishaki@hs.med.kyushu-u.ac.jp092-642-6713

Outcome results