Construction of the medical information system that provides education and total life care for patients with congenital heart disease. -Establishment of perinatal care system for women with adult congenital heart disease(ACHD)-

Construction of the medical information system that provides education and total life care for patients with congenital heart disease. -Establishment of perinatal care system for women with adult congenital heart disease(ACHD)- - Establishment of perinatal care system for women with adult congenital heart disease(ACHD)

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000019900

Enrollment

300

Registered

2015-11-23

Start date

2015-11-23

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Female adult congenital heart disease.

Interventions

None listed

Eligibility

Sex/Gender

Female

Inclusion criteria

Inclusion criteria: Woman from 20 to 49 years old who received a diagnosis of congenital heart disease regardless of the treatment situation. Woman with adult congenital heart disease who completely understands this study, and has an ability to decide whether or not to participate in it.

Exclusion criteria

Exclusion criteria: Woman with adult congenital heart disease who has other serious diseases.

Design outcomes

Primary

Measure	Time frame
Self-administered questionnaire survey. Mail distribution and return.	—

Countries

Japan

Contacts

Public ContactKimiko Kawata

Faculty of Medical Sciences, Kyushu University Department of Health Sciences

k-kawata@hs.med.kyushu-u.ac.jp092-642-6742

Outcome results