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Multicenter cohort study for Investigating Dystophinopathy-associated CArdiovascuLar Failure in Japan

Multicenter cohort study for Investigating Dystophinopathy-associated CArdiovascuLar Failure in Japan - MIDCALF-J

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
JPRN
Registry ID
JPRN-UMIN000013738
Enrollment
1000
Registered
2014-04-17
Start date
2014-04-17
Completion date
Unknown
Last updated
2026-09-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Muscular dystrophy

Interventions

None listed

Sponsors

The University of Tokyo
Lead Sponsor
National Hospital Organization (NHO) Hakone National Hospital
Collaborator
NHO Shimoshizu National Hospital
Collaborator
NHO Sendainishitaga National Hospital
Collaborator
NHO Hiroshimanishi Medical Center, NHO Iou National Hospital, NHO Akita National Hospital, NHO Aomori National Hospital,NHO Hokkaido Medical Center, NHO Kumamoto Saishun Medical Center, and NHO Suzuka Hospital.
Collaborator

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Patients with muscular dystrophy.

Exclusion criteria

Exclusion criteria: Patients without definitive diagnosis. Patients' refusal to participate.

Design outcomes

Primary

MeasureTime frame
Prevalence, death, heart failure, arrhythmia, thromboembolism, hospitalization, speckle tracking strain imaging, cardiac enzymes and markers.—

Secondary

MeasureTime frame
Renal failure, stroke, activities of daily life, quality of life.—

Countries

Japan

Contacts

Public ContactKoichi KIMURA

The University of Tokyo The Institute of Medical Science

aaj63970@g.ecc.u-tokyo.ac.jp03-3443-8111

Outcome results

None listed

Source: JPRN (via WHO ICTRP) · Data processed: Sep 19, 2026