Japan Fabry Disease Registry and Cohort Study

Japan Fabry Disease Registry and Cohort Study - J-FDR-CS

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

JPRN

Registry ID

JPRN-UMIN000009786

Enrollment

200

Registered

2013-01-15

Start date

2013-01-15

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Fabry disease

Interventions

None listed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Patients with Fabry disease (newly-identified or already-diagnosed)

Exclusion criteria

Exclusion criteria: not particular

Design outcomes

Primary

Measure	Time frame
renal prognosis, end-stage renal disese, death (CVD, total)	—

Secondary

Measure	Time frame
proteinuria, enzyme replacement therapy	—

Countries

Japan

Contacts

Public ContactHiroshi Morinaga

Japan Fabry Nephropathy Study Group Working Group for cohort study

fab@n-place.co.jp086-223-7151

Outcome results