Young children with complex neurodevelopmental and health needs Nervous System Diseases
Conditions
Interventions
The young people and their carers will be provided with an information leaflet explaining the purpose and the design of the project and will be given the opportunity to ask questions. Participants wil
Sponsors
Record Provided by the NHSTCT Register - 2006 Update - Department of Health
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Approx 84 young people (aged between 16-19 and who are potential school leavers) and their families will be recruited through data stored by Education Leeds 2. Young people from all racial and ethnic backgrounds will be included 3. Both males and females will be included 4. Sexual orientation will not be enquired about as this is not an exclusion criteria
Exclusion criteria
Exclusion criteria: 1. Young people who have already had an integrated needs assessment in the last three years (as this will confound the results) 2. Young people who are currently residing full time in a residential home, run by social services (as we would not be able to obtain a true picture of the needs of the carer and the young person may not have a single allocated carer to provide us with the needs of the person) 3. Young people who are terminally ill will also be excluded from this group
Design outcomes
Secondary
| Measure | Time frame |
|---|---|
| 1. To evaluate the quality of life/anxiety and stress levels in the young person and carer at the time of transition from paediatric services to adult services 2. To ascertain how long it takes to undertake the assessment | — |
Primary
| Measure | Time frame |
|---|---|
| To determine whether an Integrated Needs Assessment is an appropriate tool in young people with complex disabilities that will: 1. Identify their health and social needs met and unmet 2. Identify any gaps in the service provision during the period of transition 3. Facilitate smooth transition between children and adult services 4. Assist young people and their families to maximise their opportunities for social integration, education, employment and access to health care following transition into adult services | — |
Countries
United Kingdom
Outcome results
None listed