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Human rights in dementia care

Embedding a human rights based approach to dementia care

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
ISRCTN
Registry ID
ISRCTN94553028
Enrollment
280
Registered
2015-03-20
Start date
2015-03-01
Completion date
Unknown
Last updated
2021-01-05

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Topic: Dementias and neurodegeneration

Interventions

1. Booster sessions: Following the one day training event there will be three once monthly booster sessions at the unit to embed the Human Rights Based Approach and ensure compliance with applying the

Sponsors

University of Liverpool
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Inclusion criteria will be broad: 1. Clusters: All NHS sites involved in the study will be dementia-specific wards. Care homes may be included if caring for people with dementia is part of the facilities core business and they have enough residents with dementia to fulfil the needs of the study. 2. Individuals within clusters: the main inclusion criteria for individuals is a diagnosis of dementia. Issues such as age, severity of dementia, length of time at the setting will be recorded but are not regarded as inclusion/ exclusion criteria in themselves 3. Male & female 4. At least 18 years old

Exclusion criteria

Exclusion criteria: Individuals who do not have capacity to consent and have no Personal Consultee available to support them in this. There are no other formal Exclusion Criteria, although all participants (people with dementia, carers, staff) will be informed they can withdraw from the study at any stage: requests to withdraw will not be questioned and will be scrupulously honoured.

Design outcomes

Primary

MeasureTime frame
QoL-AD; Timepoint(s): Pre and post intervention

Secondary

MeasureTime frame
1. ASCOT measure; Timepoint(s): Pre and post intervention 2. Care plan audit; Timepoint(s): Pre and post intervention 3. CSRI; Timepoint(s): Pre and post intervention 4. Dementia Care Mapping; Timepoint(s): Pre and post intervention 5. EQ5D; Timepoint(s): Pre and post intervention 6. FREDA questionnaire; Timepoint(s): Pre and post intervention 7. Human Rights attitudes questionnaire; Timepoint(s): Pre and post training 8. Human Rights knowledge questionnaire; Timepoint(s): Pre and post training 9. Staff interviews; Timepoint(s): Pre and post intervention 10. WEMWBS; Timepoint(s): Pre and post intervention 11. Zarit Carer Burden Index; Timepoint(s): Pre and post intervention

Countries

United Kingdom

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 24, 2026