Topic: Dementias and neurodegeneration
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Inclusion criteria will be broad: 1. Clusters: All NHS sites involved in the study will be dementia-specific wards. Care homes may be included if caring for people with dementia is part of the facilities core business and they have enough residents with dementia to fulfil the needs of the study. 2. Individuals within clusters: the main inclusion criteria for individuals is a diagnosis of dementia. Issues such as age, severity of dementia, length of time at the setting will be recorded but are not regarded as inclusion/ exclusion criteria in themselves 3. Male & female 4. At least 18 years old
Exclusion criteria
Exclusion criteria: Individuals who do not have capacity to consent and have no Personal Consultee available to support them in this. There are no other formal Exclusion Criteria, although all participants (people with dementia, carers, staff) will be informed they can withdraw from the study at any stage: requests to withdraw will not be questioned and will be scrupulously honoured.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| QoL-AD; Timepoint(s): Pre and post intervention | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. ASCOT measure; Timepoint(s): Pre and post intervention 2. Care plan audit; Timepoint(s): Pre and post intervention 3. CSRI; Timepoint(s): Pre and post intervention 4. Dementia Care Mapping; Timepoint(s): Pre and post intervention 5. EQ5D; Timepoint(s): Pre and post intervention 6. FREDA questionnaire; Timepoint(s): Pre and post intervention 7. Human Rights attitudes questionnaire; Timepoint(s): Pre and post training 8. Human Rights knowledge questionnaire; Timepoint(s): Pre and post training 9. Staff interviews; Timepoint(s): Pre and post intervention 10. WEMWBS; Timepoint(s): Pre and post intervention 11. Zarit Carer Burden Index; Timepoint(s): Pre and post intervention | — |
Countries
United Kingdom