Dementia Mental and Behavioural Disorders Unspecified dementia
Conditions
Interventions
Potential participants will be approached by letter in the first instance. If there is no response to this invitation to take part, further approaches are made, in stages, which include a telephone ca
Sponsors
Devon Partnership NHS Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. People with a clinical diagnosis of dementia, and their carers if applicable: 1.1. Dementia is a broad term used to describe a range of neurodegenerative disorders which may include but will not be limited to: Alzheimer's disease (AD); late-onset Alzheimer’s disease (LOAD); early onset Alzheimer’s disease (EOAD); vascular dementia (VAD); mixed dementia (AD with VAD); dementia with Lewy bodies (LBD); frontotemporal dementia (FTD); Parkinson's disease dementia (PDD) 1.2. Carers in this context are unpaid and are defined as the primary person who feels responsible for and supports the person with dementia
Exclusion criteria
Exclusion criteria: 1. Those who are resident outside the local authority boundary to be served 2. Those currently undergoing emergency treatment or care. (however, a delayed second approach will be attempted, if appropriate, if the person returns home within the timeframe of the research recruitment) 3. Those within care home setting 4. Those receiving substantial support from Community Mental Health Teams (CMHT), defined as input within the last four months and not due to be discharged within the next 2 months 5. Those who present as high risk and, after referral, are taken on by CMHT 6. Those with open safeguarding referrals and ongoing planned CMHT care 7. Those with a longstanding history of mental health difficulties and currently receiving care from other mental health team 8. Diagnosed with an end-stage physical health problem (e.g. cancer, severe heart failure) with substantive multi-disciplinary palliative and/or end-of-life care in place 9. Clinically qualified decision
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The study will mainly be collecting people with dementia and carers’ experiences and perceptions of the support they have received from the D-PACT DSW and what changes it has led to in their lives, collected using realist qualitative interviews at 4-6 months and 9-12 months follow-up. The study does not have a primary outcome measure, but the following quantitative data will be collected: 1. Engagement and independence measured using the Engagement and Independence in Dementia Questionnaire (EID-Q) at baseline, 4-6 months and 9-12 months 2. Care experience measured using the Person Centred Community Care Inventory (PERCCI) at baseline, 4-6 months and 9-12 months 3. Quality of life for both the individual with dementia and carer measured using the EuroQol (EQ-5D-5L) at baseline, 4-6 months and 9-12 months 4. Carer wellbeing measured using the Carer Wellbeing and Support Questionnaire (CWS) at baseline, 4-6 months and 9-12 months | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Outcome results
None listed