Specialty: Cancer, Primary sub-specialty: Palliative and Supportive Care
Conditions
Interventions
Patient participants will provide data on their symptoms and concerns, whether these are addressed and other key demographics and social variables. They will also provide retrospective data on their u
communication, coordination of care, information and support needs, discharge planning, and experience of transitions. Data from the first five interviews will be analysed and feedback from our Patien
Sponsors
King's College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. All adult patients (=18 years) receiving specialist palliative care 2. People with advanced disease, regardless of primary diagnosis 3. Across inpatient (hospice and hospital), community and outpatient settings
Exclusion criteria
Exclusion criteria: 1. Patients considered by clinicians too ill to be approached 2. Not receiving specialist palliative care 3. Aged under 18 years
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Cost of the episode of care (and cost per phase and per diem) is captured by i) staff activity matrix at every contact, the Palliative care Resource Use Score (PRUS) at change of phase of illness and at the end of episode, and patient/carer completed inventory of palliative care services received based on the Client Services Receipt Inventory (Pall-CSRI) at end of episodes of care or three monthly whichever is earlier over the telephone. | — |
Secondary
| Measure | Time frame |
|---|---|
| No secondary outcome measures. | — |
Countries
England, United Kingdom
Contacts
Public ContactFliss Murtagh
Outcome results
None listed