Silicosis or silica associated lymphadenopathy Respiratory
Conditions
Interventions
This is an observational study. The aim is to recruit all patients with silicosis from the UK diagnosed since 2020.
The UK Silicosis Registry will be hosted at Imperial College London using the REDCa
Sponsors
Imperial College London
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Inclusion criteria
Inclusion criteria: 1. Patient reviewed in a specialist occupational lung disease service 2. Diagnosis of silicosis due to occupational exposure with diagnosis based on: 2.1. History of occupational exposure to respirable crystalline silica 2.2. CT changes consistent with silicosis or silica-associated lymphadenopathy
Exclusion criteria
Exclusion criteria: 1. Patients under the age of 18 years 2. Radiological changes of silicosis without appropriate exposure history 3. Patients where there is diagnostic uncertanty 4. Patients who do not give or are unable to give consent
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Description of clinical characteristics of patients in the UK with silicosis measured using review of patient notes at annually;Quality of life of patients in the UK with silicosis measured using WHOQOL-BREF questionnaire at annually | — |
Countries
England, United Kingdom
Contacts
Public ContactJohanna Feary
Outcome results
None listed