Adolescents with intellectual disabilities (with or without autism) Mental and Behavioural Disorders
Conditions
Interventions
The primary focus of our study is to provide intervention to individuals with restricted communication, poorly developed functional skills and behaviour that challenges, with parents who are expressin
Sponsors
Guy's and St Thomas' NHS Foundation Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Age between 11 and 19 years 2. Clinical diagnosis of learning disabilities with/without autism spectrum disorder 3. Willing to consent to participation and able to engage in intervention at home
Exclusion criteria
Exclusion criteria: 1. Parents with reduced levels of spoken and/or understanding of English, which would limit participation 2. Children with current child protection issues
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Measured pre- and post- intervention: 1. Extent to which patient's individual goals are achieved in the course of intervention measured using Goal Attainment Scaling (GAS) 2. Problematic target areas measured using the COPM in a semi-structured interview | — |
Secondary
| Measure | Time frame |
|---|---|
| At baseline and post-intervention: 1. Demographics measured using a questionnaire designed to collect families' demographic information such as first language, ethnicity background. 2. Stress parents are experiencing and what factors are causing this stress measured using the Autism Parent Stress Index (APSI) 3. Mental health and problematic/risky behaviours measured using the Assessment of Concerning Behaviour Scale (ACB) 4. Behavioural and emotional problems measured using the Developmental Behaviour Checklist (DBC) 5. Personal, social and health service resource usage measured using the Child and Adolescent Service Use Schedule (CA-SUS) | — |
Countries
England, United Kingdom
Outcome results
None listed