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A nationwide questionnaire survey on late effects among Dutch childhood cancer survivors: which invitation strategy to use?

An evaluation of response rates, questionnaire mode preferences and satisfaction of Dutch childhood cancer survivors invited for the DCOG LATER study

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
ISRCTN
Registry ID
ISRCTN84711754
Enrollment
750
Registered
2014-06-27
Start date
2012-12-01
Completion date
Unknown
Last updated
2017-05-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Childhood cancer survivors Cancer

Interventions

CCS from three centers were randomly allocated to one of three study arms on a 1:1:1 ratio. In study arms 1 and 2, two postal reminders and one telephone reminder followed the initial invitation
in the second reminder strategy (study arm 3), only one postal reminder and one telephone reminder followed the initial invitation. With every invitation, CCS received a web-based questionnaire. Paper

Sponsors

Academic Medical Center (AMC) (Netherlands)
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: We randomly selected 750 adult CCS from the DCOG LATER cohort, which includes subjects diagnosed with a malignancy (or a few specific benign disorders) before the age of 18 years between 1 January 1962 and 31 December 2001, alive 5 years post diagnosis, that were treated in one of the seven Dutch paediatric oncology and stem cell transplant centers. For the current study, CCS had to be alive, aged 18 or older and living in the Netherlands.

Exclusion criteria

Exclusion criteria: CCS were excluded if they lived abroad or were lost-to-follow-up

Design outcomes

Primary

MeasureTime frame
Participation rates assessed 1 year after the start of the study on 01/09/2013

Secondary

MeasureTime frame
1. Response rates assessed 1 year after the start of the study on 01/09/2013 2. Response type assessed 1 year after the start of the study on 01/09/2013 3. Satisfaction with questionnaire 4. Reasons for completing paper- or web-based questionnaire

Countries

Netherlands

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Mar 3, 2026