Chronic illness Other
Conditions
Interventions
Participants are randomised into either the treatment group or waitlist (control) group. Participants in the treatment group follow the intervention Op Koers Online and fill out questionnaires, four t
Sponsors
Fonds NutsOhra
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Adolescents: 1. Adolescents with a chronic disease (definition of Mokkink et al, 2007: an illness that requires at least six months of continuous medical care, permanent life style changes and continuous behavioral adaptation to the unpredictable course of the illness) 2. Aged 12 - 18 years old 3. Being able to type, read and understand the Dutch language 4. Access to a computer with internet Parents: 1. Having one or more children (aged 0 - 18 years) with a chronic disease (using the definition of Mokkink et al) 2. Being able to type, read and understand the Dutch language 3. Access to a computer with connection to the internet
Exclusion criteria
Exclusion criteria: Both adolescents and parents: 1. Patients with intellectual disabilities are excluded, their disabilities require an adapted program to overcome their communicative difficulties 2. Not being able to type, read and understand the Dutch language 3. Not having access to a computer with connection to the internet
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Psychosocial functioning (measured using CBCL/YSR for adolescents and HADS for parents) and disease-related coping skills (measured using Op Koers questionnaire). Assessments take place at baseline, after 8 (adolescents) or 6 (parents) weeks of treatment, and at 6- and 12-month follow-up period | — |
Secondary
| Measure | Time frame |
|---|---|
| Adolescents: 1. Self-esteem, measured using Perceived Competence Scale for Adolescents (CBSA) 2. Quality of life, measured using Pediatric Quality of Life Inventory – self report (PedsQL) Parents: 1. Impact of the illness on family functioning, measured using the Pediatric Quality of Life Inventory – Family Impace Module (PedsQL – FIM) 2. Parental distress, measured using the Distress Thermometer for Parents (DTP) 3. Social involvement, measured using the Inventory Social Involvement (ISI) 4. Illness cognitions, measured using Illness Cognition Questionnaire for Parents (ISQ) Assessments take place at baseline, after 8 (adolescents) or 6 (parents) weeks of treatment, and at 6- and 12-month follow-up period | — |
Countries
Netherlands
Contacts
Public ContactMiriam Douma
Outcome results
None listed