Cerebral palsy Nervous System Diseases Cerebral palsy
Conditions
Interventions
Participants will be completing surveys and there will be focus groups of parents and professionals and in-depth interviews with young people. Steps include:
1. Survey 1: Professiona
in-depth interviews with children to understand attitudes to standing frame use and acceptability of a trial.
3. Synthesis of findings from survey 1 and qualitative research, and devel
Sponsors
Newcastle Upon Tyne NHS Foundation Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Parents of young children using standing frames for cerebral palsy 2. Healthcare professionals working with children who use standing frames 3. Education professionals and other carers working with children who use standing frames 4. Children and young people age 8-18 years who have cerebral palsy GMFCS IV or V and use standing frames
Exclusion criteria
Exclusion criteria: Severe cognitive impairment and/or significant communication difficulties resulting in inability to be able to make simple choices or communicate “yes” vs. “no” responses.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Description of current standing frame use for children with CP (including treatment indications, treatment goals, types of frame, durations of intended and actual use; perceptions and practicalities of standing frame use) 2. A proposed design (Population- Intervention-Control/comparator-outcome(s) – Timeframe formulation and trial design) for a clinical trial(s) of effectiveness of frames in children with CP, GMFCS levels IV or V | — |
Countries
United Kingdom
Outcome results
None listed