Understanding the support needs of African and African-Caribbean people living with dementia, their care partners and families and the impacts of delayed support: identifying inclusive strategies to facilitate timely and culturally appropriate social care support

The African and Caribbean Elders (ACE) study

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN81177484

Enrollment

Registered

2025-07-17

Start date

2025-08-01

Completion date

Unknown

Last updated

2025-09-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Examining experiences of and accessing social care support by African and African Caribbean people living with dementia Mental and Behavioural Disorders

Interventions

1. We will review existing research to identify what is already known about how this population access and are recognised by services. We will co-produce detailed qualitative research alongside Africa

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1. Any staff working in adult social care teams 2. African and African Caribbean older people living with dementia 3. Families and care partners of African and African Caribbean older people living with dementia

Exclusion criteria

Exclusion criteria: 1. Participants with dementia who are not of African heritage 2. Staff not working with adult social care teams

Design outcomes

Primary

Measure	Time frame
Experiences of African and African Caribbean People living with dementia accessing social care support measured qualitative interviews and detailed ethnographic observations of social care staff’s everyday work. Data analysis will be informed by the analytic tradition of grounded theory. This uses the constant comparative method; as data is collected in one site, preliminary analysis of this will proceed in parallel, with this preliminary analysis informing the focus of later stages of data collection and analysis. Field notes of observation, experience, and near verbatim text will be written up into word files and all audio recordings of interviews (short and in-depth) will be transcribed verbatim by a professional transcription service. Analysis will involve the development and testing of analytic concepts and categories, and our strategies for their development include careful reading of the data, looking for patterns and relationships, noting anything that seems surprising and for any inconsistencies and contradictions across the range of perspectives gathered.	—

Measure

Time frame

Experiences of African and African Caribbean People living with dementia accessing social care support measured qualitative interviews and detailed ethnographic observations of social care staff’s everyday work. Data analysis will be informed by the analytic tradition of grounded theory. This uses the constant comparative method; as data is collected in one site, preliminary analysis of this will proceed in parallel, with this preliminary analysis informing the focus of later stages of data collection and analysis. Field notes of observation, experience, and near verbatim text will be written up into word files and all audio recordings of interviews (short and in-depth) will be transcribed verbatim by a professional transcription service. Analysis will involve the development and testing of analytic concepts and categories, and our strategies for their development include careful reading of the data, looking for patterns and relationships, noting anything that seems surprising and for any inconsistencies and contradictions across the range of perspectives gathered.

—

Secondary

Measure	Time frame
There are no secondary outcome measures	—

Countries

England, United Kingdom

Contacts

Public ContactShadreck Mwale

shadreck.mwale@uwl.ac.uk+44 20 8209 4278

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 4, 2026