Children with developmental delays and disabilities and their caregivers Pregnancy and Childbirth
Conditions
Interventions
In brief, this study including:
1. A cross-sectional follow-up of a prospective cohort of children 3-5 years either exposed (cases) or unexposed (controls) to complications around the time of birth
the prospective mixed-methods cross-sectional follow-up study to REFINE is included as background
2. Development and feasibility testing of an intervention for children with developmental delays and
2.1. Qualitative in-depth interviews
2.2. Piloting of planned intervention components and study tools
2.3. Participatory co-creation workshops
2.4. Establishment of a community advisory board.
All d
1) gross and fine motor function 2) communication, speech and language 3) cognition, 4) behavior and 5) social function 6) epilepsy 7) hearing and 8) vision 9) other health conditions. The risk of DDD
Sponsors
Uppsala University
Golden Community
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. In-depth interviews: purposefully selected caregivers of children with developmental delays or disabilities 2. Piloting study tools and educational apps: purposefully selected caregivers of children with developmental delays or disabilities. 3. Participatory co-creation workshops: purposefully sampled stakeholders such as caregivers, health workers and teachers 4. Community advisory board: purposefully sampled stakeholders such as caregivers, health workers and teachers
Exclusion criteria
Exclusion criteria: Not meeting the inclusion criteria
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The children's participation in everyday activities measured using the tool Picture My Participation (PMP), which will be piloted on 11 caregivers of children with a developmental delay or disability in this feasibility study using the interview-based tool at one timepoint | — |
Secondary
| Measure | Time frame |
|---|---|
| The in-depth interview will be audio-recorded and transcribed verbatim. The feasibility testing of one of the intervention components using the educational Software Onecourse will be done with 11 children and will include an assessment of the child’s performance level in literacy and numeracy using Onetest, a Video recording protocol of the child's interaction with the software, and questionnaires on attitudes towards learning and engagement with learning. The progress of the workshops and community advisory board will be documented using workshop/meeting notes and co-created documents. Observations and assessments will be undertaken at two points with two weeks in between the assessments. | — |
Countries
Nepal
Contacts
Public ContactCarin Andrews
Outcome results
None listed