Multiple sclerosis Nervous System Diseases Multiple sclerosis
Conditions
Interventions
The online questionnaire consists of questions about patient demographics, clinical characteristics, quality of life measures (using the multiple sclerosis quality of life (MSQOL)-54), health state (u
Sponsors
Erasmus School of Health Policy & Management
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Patients diagnosed with clinically definite multiple sclerosis (relapsing-remitting MS, secondary progressive MS, primary progressive MS) 2. Age 18 years or older 3. No restrictions whether patients are or are not using immunomodulatory therapy, or have used other therapies in the past 4. Participants have to have access to internet and the OPTOGENERAPY website to fill in the online questionnaire
Exclusion criteria
Exclusion criteria: Patients with a co-morbidity that negatively influences their cognition (for example dementia, stroke)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Quality of life measured using MSQOL-54 2. Health status measured using EQ-5D-5L Both outcomes measured at a single timepoint, when the participant fills out the questionnaire | — |
Secondary
| Measure | Time frame |
|---|---|
| Clinical and treatment characteristics, measured by questionnaire at a single timepoint, when the participant fills out the questionnaire | — |
Countries
France, Germany, Italy, Netherlands, United Kingdom
Contacts
Public ContactLaurenske Visser
Outcome results
None listed