NEON-C: Trial to test the feasibility of providing online recorded mental health recovery stories to people with experience of caring for people with mental health problems

Conditions

Mental health Mental and Behavioural Disorders Mental health

Mike Slade, Stefan Rennick‐Egglestone, Yasmin Ali, Chris Newby, Caroline Fox et al. (29 authors)

Programme Grants for Applied Research2025-09-01

Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with psychosis experience (NEON Trial): a pragmatic randomised controlled trial.

Slade M, Rennick-Egglestone S, Robinson C, Newby C, Elliott RA, Ali Y, Yeo C, Glover T, Gavan SP, Paterson L, Pollock K, Priebe S, Thornicroft G, Keppens J, Smuk M, Franklin D, Walcott R, Harrison J, Robotham D, Bradstreet S, Gillard S, Cuijpers P, Farkas M, Ben-Zeev D, Repper J, Kotera Y, Roe J, Llewellyn-Beardsley J, Ng F.

2024-10-234 citations

10.1016/j.lanepe.2024.101101

Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing non-psychosis mental health problems (NEON-O Trial): updated randomised controlled trial protocol.

Rennick-Egglestone S, Elliott R, Newby C, Robinson C, Slade M.

2022-01-299 citations

10.1186/s13063-022-06027-z

Opportunities, Enablers, and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings

James Roe, Susan Brown, Caroline Yeo, Stefan Rennick‐Egglestone, Julie Repper et al. (13 authors)

Frontiers in Psychiatry2020-10-3022 citations

10.3389/fpsyt.2020.589731

Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials.

Rennick-Egglestone S, Elliott R, Smuk M, Robinson C, Bailey S, Smith R, Keppens J, Hussain H, Pollock K, Cuijpers P, Llewellyn-Beardsley J, Ng F, Yeo C, Roe J, Hui A, van der Krieke L, Walcott R, Slade M.

2020-07-2027 citations

10.1186/s13063-020-04428-6

Interventions

Participants will access the stories through an online interface called the NEON Intervention. The NEON Intervention draws on stories in the NEON Collection. This has been assembled from published to

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1. Aged 18 years or above 2. Any gender 3. Experience of being an informal carer for someone with experience of mental health problems within the last five years 4. Able to understand written and spoken English 5. Able to access or be supported to access the internet 6. Able to give online informed consent.

Exclusion criteria

Exclusion criteria: 1. If eligible for the NEON Trial (ISRCTN11152837). 2. If eligible for the NEON-O Trial (ISRCTN63197153).

Design outcomes

Primary

Measure	Time frame
Manchester Short Assessment (MANSA) of health-related quality of life, captured at 1 week, 12 weeks and 52 weeks (primary endpoint) after baseline.	—

Secondary

Measure	Time frame
Secondary outcome measures will be assessed at baseline, one week, 12 weeks and 52 weeks after baseline: 1. Hope will be assessed through the Herth Hope Index (Herth, 1992) 2. Meaning in Life will be assessed through the Meaning in Life Questionnaire (Steger et al, 2006) 3. Empowerment will be assessed through the Mental Health Confidence Scale (Carpinello et al, 2000) 4. Symptomatology will be assessed throughthe CORE-10 (Barkham et al., 2013)	—

Measure

Time frame

Secondary outcome measures will be assessed at baseline, one week, 12 weeks and 52 weeks after baseline: 1. Hope will be assessed through the Herth Hope Index (Herth, 1992) 2. Meaning in Life will be assessed through the Meaning in Life Questionnaire (Steger et al, 2006) 3. Empowerment will be assessed through the Mental Health Confidence Scale (Carpinello et al, 2000) 4. Symptomatology will be assessed throughthe CORE-10 (Barkham et al., 2013)

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Countries

England, United Kingdom

Outcome results

None listed